Nicholas had a very rare disease, Batten Disease. Though his body betrayed him, his soul always shown through!
Our son was diagnosed with Batten Disease in December 2005. This is a
neurological degenerative disease that leads to an all too early death of its
suffers. The children with this disease will only survive into their late teens
or early twenties.
We are trying to educate the public to this cruel disease, and hope for
added help and support to try to find a cure before it's too late.
